tag:blogger.com,1999:blog-6761080430651369248.post8448864898160710394..comments2011-02-23T23:57:51.642-08:00Sue Sturgishttp://www.blogger.com/profile/15577236822527428200noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-6761080430651369248.post-28309160500403323712007-10-26T04:44:00.000-07:002007-10-26T04:44:00.000-07:00I would encourage the polycythemia vera victims not to participate in any future studies. The scientists appears to be using the victims as guinea pigs for their academic research and for the opportunity to get research money. Are the patients with the JAK2 mutation treated any differently than the patients without the JAK2 mutation? The answer is"No." We need studies that look for the cause of the polycythemia vera and for ways to prevent it. We do not need academic studies that tell the victims nothing and that do nothing to help the patients clinically.Concerned Citizennoreply@blogger.com